PurposeCity
PurposeCity

Episode · 1 month ago

15: Come Together

ABOUT THIS EPISODE

PurposeCity's 'Come Together' episode was recorded at the Brighton Walk to End Alzheimer's! Chuck Gaidica (broadcasting personality), Jennifer Lepard (President / CEO of Alzheimer's Association Michigan), and Nicole Colley (Development Manager of Brighton Alzheimer's Association) discuss the importance of communities putting their hearts, mind, and time together for a worthy cause.

Partaking in this year's walk was Team Suzy, whose website you can find at https://www.teamsuzy.org/ Part of Team Suzy is our very own advisor, Jimmie Plaskey. Also at this event were EWM's Butch Herzog, Colleen Barnes, Lisa McCormick, and Alissa Earl.

Executive Wealth Management is proud to be an annual sponsor of the Brighton Walk to End Alzheimer's and present Chuck Gaidica as the emcee.

This is purpose city stories ofhumanity in action presented by executive wealth management. Guest onpurpose city do not necessarily reflect an endorsement of executive wealthmanagement. All right welcome the purpose city if it sounds a littledifferent today, we're outside for the first time on the streets of downtownBrighton and we're calling this one come together. There's a lotcommunities can do when they kind of put their minds together their heartstogether their time together a little Saturday morning. Here it's a beautifulday and we've had all sorts of the community and downtown Brighton cometogether and a few people have come together with me and I'm actually goingto hand this over, because his professionalism outweighsmine and he's a and and he's an expert. Unfortunately, on this topic as it's ithim personally, which is this, is an AL...

...timer's walk. I walked on to all timersand he knows the people at the table even a little better, and I do so chucka Daca. Well, it's good to see you again yeah thanks for going back on abeautiful morning, you're right. I took a piece of your candy and I'm trying toget through that. But what a great morning for a walk rightand it's just something that is near and dear to myheart. So I was fortunate to be part of the walk et the Detroit Zoo and that'scoming back again this month, and here we are in this time of a pandemic, andyet isn't it nice to be near people, see people being able to healthfully.Do some shit specially outside, but al timers is a is a cause, that's dear to our heart,because my father in law, John suffered from dimension before he passed and mymom Jerry had all timers and passed a little over two and a half years ago.So we actually lost my mom and dad within four and a half months of eachother for two different issues with each with brain disease, and it's a it's something that makes you takepause for my mom's journey. It was...

...about seven years, not quite and didn'tsee it coming. Didn't really think that happened, but, interestingly enough,when my dad passed and he passed first, it was a bit of broken heart syndrome,even with her in the full throes of Al Timers. She knew the day he passed andnobody told her well and so the the power of the human spirit that we canfeel when we're at events like this one this morning in Brighton and the powerof the human spirit. What's the provision that somehow he could touchher on the way out is astounding to have lived through that and no as sadas it is and as challenging as it was many times, there's still great hope when you seethe people that were here this morning, right Jennifer. Oh definitely this thiswalk is amazing. When you look around and who you've got here, you've gotbusinesses, you've got high school students, you've got just people fromthe community and you know every time I'm at a walk. I'm always thankingpeople for coming, and so many times they look at me and say. Thank you tome because it's such a sense of community for them,...

...but this this Brighton is just kicking,but if I'm allowed to say that on a podcast they are the number one team inthe state right now in terms of reaching their goals. Is that awesome?It's amazing and it honestly doesn't feel like coved hit this town at all,so congrats to Nicole, who led this great event and it's terrific andNicole from your perspective, boots on the ground, because I know I saw thespreadsheet your day starts way earlier than you know is sitting here thismorning, while everybody's out, but you've got to feel really good aboutwhere this has gone and how it's succeeded in beyond yeah it's. You know,I inherited a really great community when I started this walk. I was avolunteer before I joined on his staff and it's just it's been really amazingto see it continue to grow and take new shape and take on new things, and we'vejust had in a lot of aspects this year that are really cool, so both Nicoleand Jennifer are the bosses of me today. You know they get to tell me where togo and what to do and it's it's been a really a joyful experience to be partof all timers of Michigan, and we...

...should point out AL Z, dot, Org right because there's so many different waysto give back. Some people can't walk, but I say that, and yet there are kidsand strollers and I've seen people in wheelchairs right. So there are, butthere are ways to give. There are ways to continue to give and to look for alocal walk where, whenever that comes up in your community or start one andmove the ball along when it comes to fundraising, because we've heard in thenews this year about drug trials and things right so I mean moving thisalong is what we're all here for yeah this year, Educanda Mat was approved by the FDA.It's the first drug that has ever been approved to treat the underlyingbiology of all samers disease. So it's a huge first step and we know it's notperfected. It really is for a very small subset of people that have allsimmers disease, but we know that when the first drug comes out, there's drugsright behind it and there's an opportunity to kind of tweak that sowe're expecting really good things down...

...the pike. And it's thanks to all thevolunteers who come out at US raise money, but not only raise money. Youknow because, like you said, everyone can't walk and maybe raising moneyisn't for everyone, but we have lots of opportunities to join us when to doeducation. Programs in the community run support groups. We I just talk toone of our volunteers who advocates and who is at the front door of her statelegislature, often to remind her of what she needs to vote for, and we areso excited that we just got past legislation that funds the firstdimension unit, which means there's going to be an office in stategovernment that pays attention to dementia for the first time ever. So weare super excited about that and that's because of all the volunteers who madesure their congress, people and elected officials knew what to bout for and howawesome is it is to hear you say that there's the first ever unit, but ittook a minute right and a number of years. Yes, and here we are with what ahundred ninety thousand people in the State of Michigan that have all timers,that we know of right and yet the numbers are bound to grow. If you justlook at the metrics, I mean you know as...

...we're all aging we're kind of aginginto a demographic. But I tried to point this out from the stage when I look out and I see a see ofyoung people, I'm looking at a dad holding a baby right now. It hits methat we're doing this, for not only people among us who may be in the midstand the throws of Al Timers, but for ourselves and our kids and their kidsright, because we're all kind of moving through life together. Well, chucking.The other good point you know it's, your my father was diagnosed with MileCopano aparment last summer. It doesn't just affect my father. It affects me mysister, my brother, my kids, because there's care giving to be done, there'ssmoke detector batteries that need to be changed, that when you go over thereyou're thinking, how long has he been listening to basic, sometimes t it, andI think you know to realize you know when we talk about a hundred and ninetythousand people. We also talk about half a million people in this statethat are affected as caregivers and, like you said, it's unpaid people havejobs. There's amazing statistics on the number of people that are forced toreduce their time in the word force or even leave the work force, because theyneed to care for someone and that's a...

...big financial impact on families aswell. So so we've had a marching band. At least one we've had the cheerleaders. I saw the dance team. I was waiting for my big dance number and itdidn't come up. I think we ran too long on time, but Nicole, what you werewalking around a lot, because that was what you had to do today. What did yousee some great stories? People you saw because even dogs are in purple thismorning you know yeah, I saw quite a few dogs dressed up in I mean for me, there's a lot of peoplethat I talk to like on the phone or maybe be a email throughout the seasonand that I just don't have a face for so it's always really neat to me.Somebody for the first time face to face and like kind of know who they areall ready but meet them and see how their families have been impacted. But just I think, the first time thatyou see somebody come in and it's like their first walk right that look ontheir face and that feeling that they have that they've never been herebefore. But it's just incredible to be here- and I just saw so many of thosepeople today and I just love that got a lot of purple here. The coroded. That'sright! That's right- and you know when it comes to my friendship with Ken andExecutive Wealth Management and then...

...team Susi, who I've got to know familymembers. You realize that there's the profoundnature of how this affects your own personal family and then how thecircles do radiate out to even when you mention it even casually to somebodyand someone says yeah, my mom is in the midst of it. You realize how dramaticthis is for so many people for sure, Nicole. You speak in quite a few places.Probably is it right if, when you're in a room or when you dress people do askfor a raise of hands, I do that's usually one of my openers so I'll,introduce myself and kind of say. You know I like people to know that I livelocally and I'm a local representative. So T I don't think I'm just fromwherever and I don't know anybody, but usually one of my first questions is,you know, show up hands how many of you either have somebody in your family orknow somebody? Maybe it's a neighbor or a friend, that's affected by thisdisease and nine times out of ten that almost the entire room has their handsRaserie. I think it's a good visual to like when you're giving thatpresentation for people to see like wow. This really is something big, and thisreally is affecting a lot of people yeah. If you don't know all the stats,I think to that would really stick with...

...you. Are I don't know if that's exactnumber, but it's probably about ninety percent or a nine out of ten people,have somebody affected? Would that be about right? I mean you're, seeing thatin a room anyway on the average and zero people survive all timers, yeahand- and really you know, that's one of the things that we really try hard toeducate people on I've. Had many people tell me my husband doesn't have allsigners. He just has dementia. There are other forms of dimension, none ofthem have a good outcome. They are all fatal diseases and you know that's whywe really try to encourage people to make sure they get to the doctor. Getas us, because the other thing is, there are other things that can causesymptoms that look like all imers that are not dementia and though some ofthose are fixable, so we want people, you know we don't want people to justsay: Oh well, this is what happens. We want them to go and get assess and seeif there's something else that may be can be treated, but if it's it, if itis Dametha really start to think through plans and really how they're going tomove forward, and is it a cool we're living in a time of technology whereyour watch can tell you honey, I fall...

...in and I can't get up. I mean you know,there are all kinds of things we can do now that even during my mom's illness,those things were not quite available in terms of assisting her. We had toput grab bars in the Bath Suvin, you know, so we started to do things to getahead of that. To your point, and that's a stressful thing all by itselfa admitting that you need to do that and then even being the person who sortof knows what's happening at that point and realizing wow. I'm at this pointwhere I need that kind of assistance. It is stressful on the caregiver sideto definitely so people were involved in this event and they're. Listening tothis, how could they be involved in next year, whether this specific onesomewhere in the state of Michigan or, if they're, living outside of Michigan?How do they find out? He brought that up because even in Michigan we havetwenty four walks. Well, we have seven just going on this weekend. So if yousay I'm not that close to brighten trust me, we can find a walk. That isnear a sea. We have committees for all of those walks led by great staff likeNicole, so you can just go to one. You...

...can go on alsdorf Michigan at list allthe walks it'll connect. You we're happy to connect you with the staff,leadership and we'd love to have. You joined the committee. We'd love to haveyou think about starting a team if you're not really sure you're ready forthat we'd love to come out to your business. Maybe do a presentation, youknow. One thing we know about all the things that we've talked about is howmuch this impacts work places as well, where places are impacted when theirboys have to take time off or our late, because they're caregiving so we'd liketo help educate work places as well and and if walk isn't for you, supportgroups, education, programs, advocacy, we have tons of ways to volunteer sojust go to Alzado and we will connect you great all right want to think allthree of you. You have a last part check, no just use the resources of theAltemera Association, they're important and when you're on the other side,dealing with a mom or dad or a log one reaching out and Al Timer's Association of Michigangives back so much as well. I have to say that it helped. I can't tell youhow many times I called the toll free...

...number for help so they're here to helpus. It's not just please help them they're here, to help us to great allright thanks again and purpose city is a presentation of the executive wealthmanagement and it exemplifies our core values of trust, community andcompassion. I.

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